Cardiac failure wasn’t on my mind until three years ago. Two years ago today I had open heart surgery. The surgery has impacted nearly every single aspect of our lives. Our lives today have very little semblance to our lives of two or three years ago.

Cardiac failure: Attention Future Hikers!

Why am I telling you about this? I’m putting this out there for future hikers and adventure seekers that have cardiac conditions and are doing a bit of research.

When I tried researching PCT thru-hiking and heart conditions I didn’t find any information. I suspect this is tied to the age demographics of those who actually thru-hike the PCT versus the age demographics of folks with heart conditions.

Let’s state this up front though, I’m not a doctor. I have zero medical training. You should seek medical advice for any questions or concerns you may have. Don’t sue us if you head out and do something foolish after reading our blog!

Cardiac failure: A brief history

Three or three and a half years ago I began having what I thought were panic attacks, minus the panic. Work was crazy stressful and our volunteer lives were crazy stressful. I recall an awareness of my heart racing on several occasions. It was weird, but it went away after a bit. No worries, right?

We went snowshoeing in early January 2016.

New Year’s day-All hell is about to break loose

I recall being very tired during the outing, but it passed. A week or two later I went to an urgent care doctor on a Friday for a physical before I began preparing to run a marathon. All hell broke loose. An electrocardiogram showed an irregular heartbeat.

I think I was pretty chill but the urgent care doctor’s staff were freaking out. “Don’t hesitate to call 911” between now and Monday when you visit a cardiologist. (Gee, thanks.) Anyway, I ended up in a cardiologist office and they were much more relaxed about my irregular heartbeat. They see it every day.

Cardiac failure: Hello, my name is Atrial Fibrillation

I learned that my irregular heartbeat is called atrial fibrillation (AFib). I’ll allow the good folks at the American Heart Association to explain AFib.

Over the next year or so I had six or seven electrical cardiac conversions. I became great friends with the folks at Southwest Washington’s PeaceHealth Cardio and Vascular center. (Is it really that good to be on a first name basis with everyone in the doctors office and cardiac surgical center?)

A cardioversion is a procedure where a very small electrical current is applied to the heart to return the heart to a normal sinus rhythm.

Cardiac Failure: Enter the electrical cardio-version

The electrical cardioversions didn’t “stick” and my heart continued to return to an irregular heartbeat. The longer I stayed in AFib the worse I felt. I was very tired. In my case the AFIb was pretty much all the time, 7 X 24.

Cardiac Failure: Enter the chemical cardio-version

When the heart isn’t beating properly blood can pool in the hearts left atrial appendage. The blood hangs out in the left atrial appendage and then clots. The clots may exit the heart, lodge in the brain and cause a stroke. I wasn’t a big risk for a heart attack, but my risk for a stroke was very high.

The cardiologist prescribed more and more aggressive medications to attempt a chemical cardiac conversion. No dice.

Cardiac Failure: Small Surgeries (Hospital stay = 3 to 5 days)

I had a cryoablation surgery. The surgery was an initial success but I returned to AFib shortly. Months passed while we hoped for an improvement.

I had a radiofrequency ablation about a year later. Same results as the cryoablation.

Cardiac Failure: Interviewing surgeons

I was referred from my cardiologist to a local cardiac surgeon for specialized surgery. Noelle and I interviewed the cardiac surgeon. It was not a good fit.

The cardiac surgeon complained about long term Afib patients having too much knowledge and being a pain in ass with so many detailed questions. When I inquired about his patient loss percentage during/after surgery he told us that he could “give a shit” if we let him perform the surgery, his pay would be the same. Well, uh, no thanks…we continued our search.

Ultimately we found a surgeon in St. Louis Missouri at Barnes-Jewish Hospital that answered our questions and invited our feedback. Vetting a surgeon is tricky though. I’m not a doctor, what do I know? As it turns out, with a little common sense and a bit of research, it is quite possible to make an educated and informed surgical decision.

I spent a massive amount of time speaking with the surgeon’s head nurse during the decision making process. Most, if not all, of my questions were answered before I actually met the surgeon.

Cardiac Failure: Getting my affairs in order

After making a decision to proceed with surgery I worked to get my affairs in order. I suppose it was the usual stuff; leave of absence from my job, an updated will, advance directive, power of attorney, password lists, account lists, etc. It was incredibly stressful,

I wrote letters to each of our children and a letter to Noelle to be opened in the event of my death. This was the absolute most difficult part of my surgical preparation, but the most valuable.

We headed for Missouri and were lucky enough to meet up with our friends Bob, Laurie and Fr. Fred the night before I checked into the hospital.

Cardiac Failure: Enter friends

Bob & Laurie

We hung out with them, ate dinner, drank a few beers and relaxed just a little.

The next day I checked into the hospital. Our friends Jack and MaryCarol traveled to the hospital from Oklahoma to be with us for a few days around the surgery.

JMc at Monkey Island

Our daughter Tayler joined us for the party too!

Steve & Tayler in Tokyo

It was so good to be around friends and family where I could just be real. Over time, as the Afib had become worse and worse, I really withdrew from friends and family. Everyone wanted me to feel better and to act better. It was hard to disappoint everyone with the truth; I just felt horrible. Each night when I went to bed I’d wonder if I’d wake up the next day. (Buzzkill huh?) It was far easier to just isolate.

Open heart surgery

The surgery itself was difficult. It was not pleasant.

I was in the cardiac unit for 13.5 days. This is a very long time to be in a hospital. A. Very. Long. Time. Lots of time to think and ponder.

When I exited the hospital I had a plethura of new scars and an unexpected pacemaker in my chest. I had many different mental scenarios on what it would be like to leave the hospital, but not one of them included a pacemaker!

We spent another two weeks residing at a local hotel so that I remained close to the cardiac surgeon “just in case of trouble”.

I was off work for three months. I attended both cardiac physical rehab and cardiac lectures (diet, stress management, etc) three times a week.

Cardiac rehab graduation

Cardiac Rehabilitation

After three months the cardiac rehab folks set me free. I’m forever grateful to the awesome folks at PeaceHealth Cardiac Rehab.

I observed my fellow rehab patients very carefully. Some (my judgement) were going through the motions but not really making an effort. To me, cardiac rehab was a second chance. I worked my ass off. If I could have continued my rehab for another three months I would have signed up in a heartbeat.

I believe that my cardiac rehab gave me confidence that my heart worked. I wasn’t going to die if I ran on a treadmill or worked out aggressively.

So, can I hike safely?

So. Here we are in the present. Two years later. We sold our house, sold two of three cars, put all our stuff in storage and hiking the PCT. Crazy, crazy, crazy.

I’m not going to say something trite like “If I can do it, you can do it.” Truthfully, I don’t know if I can actually finish this trail in one thru-hike attempt, but I’m doing my absolute best.

I spoke with my general practitioner, cardiologist and cardiac surgeon about hiking the PCT. If any of the three had advised against the hike I would have not hiked this year. All three physicians gave their blessings and advised me to stay hydrated. I do carry extra water. (I actually wanted to hike to Everest Basecamp and was concerned about how my heart would react to the elevation. My cardiologist suggested trying something “local” first.)

I’ve been in contact with my general practitioner, cardiologist and cardiac surgeon while I’m out here on the trail. (My GP is a hiker! How awesome is that?!?)

A Path forward

The past two years have been a blizzard of emotions; joy, sorrow, grief, bliss, happiness, loneliness, anger and acceptance. I’m not the same person I was two years ago. Time will tell if I’m a better person. I do hope so. I just want my children and wife to be proud of me and love me.

The whole surgery/heart stuff is one of the least interesting things about me. I rarely share it on the trail. I’m sharing this with the hope that it will encourage a future adventurer that it’s possible to live life “outside the box”, even when faced with serious health challenges.

You, the future adventurer, determine what “outside the box” means to you.

Thanks to you for joining us on this leg of our adventure.